So my edema has been worse the past couple days. As a result, I've increased the amount of Lasix I'm taking, which in turn has made the BMT doctors concerned about my kidneys. So they wanted me to come in today for a checkup. While there they performed a blood test that indicated my heart is under stress, similar to those in heart failure. My doctors wanted EKG and ECHO tests performed along with supplemental IV drugs to take off the excess water. They convinced me the best way to do this was for me to be admitted to the hospital. So I was.
Worst decision ever. Sure, I had my EKG and ECHO, but I spent the rest of the day sitting around not hooked to any IVs or receiving any treatment for my edema because today it is much better. I took all my medications as I would have at home (after lengthy explanations of my medication regimes.... they still don't have it right), but instead of being free I got to sit in a hospital room. It is so stupid.
On top of it all I'm on a low-sodium diet so I couldn't order anything I wanted off the hospital menu. Literally everything I tried to order had too much salt in it, I had to modify it somehow (read: had to make an already crappy meal even crappier).
We'll see what the EKG and ECHO results are, but the doctors had better have a treatment plan for tomorrow. Because after a day like today it needs to be damn convincing if they expect me to stay inpatient.
22 September 2010
20 September 2010
Complete with Velcro
Today I went and was fit for a pair of diabetic shoes. Hopefully I'll be able to better fit into these shoes than my current ones.
My edema has gotten worse over the past week, since the time I started taking the narcotics. I've upped my Lasix and have been wearing my compression stockings, but they're not much relief. The sooner the pain from the shingles goes away the sooner I can get off the narcotics and, hopefully, stop the massive swelling again.
My shingles sores have dried up and become crusty, now they just need to peel off. The rash is like one big scab. It's itchy as hell and still hurts but the narcotics keep me comfortable, even if I feel like every time I sit down I could fall asleep for hours.
Dr. Oran had her baby, a girl. Everyone is doing well as far as I heard, even though she was four weeks premature. Because she was so early her transition plan hadn't yet been determined, so now that she's out (probably until the new year) my nurse coordinator Carol is still trying to figure out which doctor will be taking over my case. It should be decided sometime this week.
The shingles is stable, my GVH seems to be stable, so I don't have an oncology appointment until next week.
My edema has gotten worse over the past week, since the time I started taking the narcotics. I've upped my Lasix and have been wearing my compression stockings, but they're not much relief. The sooner the pain from the shingles goes away the sooner I can get off the narcotics and, hopefully, stop the massive swelling again.
My shingles sores have dried up and become crusty, now they just need to peel off. The rash is like one big scab. It's itchy as hell and still hurts but the narcotics keep me comfortable, even if I feel like every time I sit down I could fall asleep for hours.
Dr. Oran had her baby, a girl. Everyone is doing well as far as I heard, even though she was four weeks premature. Because she was so early her transition plan hadn't yet been determined, so now that she's out (probably until the new year) my nurse coordinator Carol is still trying to figure out which doctor will be taking over my case. It should be decided sometime this week.
The shingles is stable, my GVH seems to be stable, so I don't have an oncology appointment until next week.
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