I've been out of the hospital for five days now and it is great to be home. My skin is still peeling all over my hands, face, and shoulders but it doesn't bother me too much. My sense of taste is still gone - I can't taste anything sweet or salty. It seems to be coming back slowly, but maybe I'm just adjusting to the bland taste of everything. I miss taste so bad, I never would have thought losing it would bother me as much as it is. I'm hoping it doesn't last much longer...
Otherwise things are ok. My diabetes is under decent control even though I'm still on steroids. It's good to be outside and enjoying the spring weather.
01 May 2010
26 April 2010
Day 56
So I haven't been writing much lately mainly because I've been frustrated with my care recently and haven't felt like talking about it. Today the doctors said I could be "revved up" on the high-dose steroids I'm currently taking, making me more agitated and short-tempered, but I think I'm just so sick of being in a damn hospital. Let's recount 2010 so far:
Days Hospitalized:
January - 31
February - ~14
March - ~21
April - 10 (so far...)
Total - 76 (out of 116)
That's 66% of my year spent in this hospital. And they say it's the meds that have me revved up.
Anyway...
I'm still inpatient. I was finally diagnosed with mild GVHD Friday after the doctors spent a week diagnosing me incorrectly with who-knows-what. So with GVHD comes high-dose steroids, which I'm glad to say I've been tolerating well with my diabetes. They have also greatly reduced my GVH symptoms, so I've been feeling well the past few days, although that makes it harder to stay in a hospital room all day. I've been arguing with my attending doctor about a discharge date and I finally got him to commit to tomorrow, pending no changes yadda yadda.... i just hope he walks in on rounds at 10am with my discharge paperwork filled out, cuz I'm going to be packed and sitting on the bed ready to go.
With GVH, I look like a snake my skin is peeling so bad, everything I eat tastes like styrofoam, and I have diarrhea. Other than that things are going well I guess. I just need to get the frack out of here.
Days Hospitalized:
January - 31
February - ~14
March - ~21
April - 10 (so far...)
Total - 76 (out of 116)
That's 66% of my year spent in this hospital. And they say it's the meds that have me revved up.
Anyway...
I'm still inpatient. I was finally diagnosed with mild GVHD Friday after the doctors spent a week diagnosing me incorrectly with who-knows-what. So with GVHD comes high-dose steroids, which I'm glad to say I've been tolerating well with my diabetes. They have also greatly reduced my GVH symptoms, so I've been feeling well the past few days, although that makes it harder to stay in a hospital room all day. I've been arguing with my attending doctor about a discharge date and I finally got him to commit to tomorrow, pending no changes yadda yadda.... i just hope he walks in on rounds at 10am with my discharge paperwork filled out, cuz I'm going to be packed and sitting on the bed ready to go.
With GVH, I look like a snake my skin is peeling so bad, everything I eat tastes like styrofoam, and I have diarrhea. Other than that things are going well I guess. I just need to get the frack out of here.
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