26 April 2010

Day 56

So I haven't been writing much lately mainly because I've been frustrated with my care recently and haven't felt like talking about it.  Today the doctors said I could be "revved up" on the high-dose steroids I'm currently taking, making me more agitated and short-tempered, but I think I'm just so sick of being in a damn hospital.  Let's recount 2010 so far:

Days Hospitalized:
January - 31
February - ~14
March - ~21
April - 10 (so far...)
Total - 76 (out of 116)

That's 66% of my year spent in this hospital.  And they say it's the meds that have me revved up.


Anyway...


I'm still inpatient.  I was finally diagnosed with mild GVHD Friday after the doctors spent a week diagnosing me incorrectly with who-knows-what.  So with GVHD comes high-dose steroids, which I'm glad to say I've been tolerating well with my diabetes.  They have also greatly reduced my GVH symptoms, so I've been feeling well the past few days, although that makes it harder to stay in a hospital room all day.  I've been arguing with my attending doctor about a discharge date and I finally got him to commit to tomorrow, pending no changes yadda yadda....  i just hope he walks in on rounds at 10am with my discharge paperwork filled out, cuz I'm going to be packed and sitting on the bed ready to go.

With GVH, I look like a snake my skin is peeling so bad, everything I eat tastes like styrofoam, and I have diarrhea.  Other than that things are going well I guess.  I just need to get the frack out of here.

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