30 December 2009

Day 8

Counts:
Hg 9.3
WBC 0.2
Platelets 24
absN N/A
Creatinine 1.00

Today I felt pretty good, the vampire diet yesterday helped with that.  I'm still plugged up though, so tomorrow they're planning more drastic measures to get things moving.  My belly's starting to distend so I think it's time.

Dr. D'Cuhna stopped by today, he just wanted to make sure my doctors aren't over-reacting to these fluid pockets I have where my left lung used to be.  Before I began chemo I had a CT scan.  The radiologist who read the scan saw the pockets and was concerned they were harboring infection.  He then recommended in his report to my oncologist that they be drained and cultured.  This got my oncologist all concerned since pockets of fluid breeding infection in a chemo patient is dangerous news.  These pockets, however, are normal for two months post-pneumonectomy.  Dr. D'Cuhna has been viewing my CTs and feels they're nothing to be concerned over at this point.  If there was infection it "wouldn't be subtle" and an attempt to drain and culture them would most likely lead to infection.  My pulmonologist concurs with Dr. D'Cuhna, and once my oncologist explained my surgical timeline to the radiologist he changed his recommendation.  So we're all on the same page.

Last day of my steroid treatment was today.  Tomorrow they should switch me completely back to my pump.

29 December 2009

Day 7

Counts:
Hg 7.5
WBC 0.5
Platelets 34
absN 0.5
Creatinine 1.07

I received two blood packets today because my hemoglobin was low.  This means I should have more energy tomorrow than I did today.  I'm less constipated tonight but there's room for improvement.  I'm still pleased that I have no nausea or other side effects.

Tomorrow will be my last day of my anti-nausea steroid treatments, so hopefully I'll be off the insulin drip (no more hourly glucose checks!) and completely back on my pump.  My fingers need the break.

28 December 2009

Day 6

My counts for 12/28:
Hg 8.4
WBC 0.8
P 51
absN N/A
C 1.06



Another sleepy, constipated day.  I spent most of it sleeping, then Kathleen and Dietz came to visit and the Vikings lost.  I'd feel great if my bowels were moving.  Hopefully that'll change tomorrow.

Day 5

Every morning I have blood drawn and am given my "counts" for the day - the levels of cells and cellular products my doctors watch to monitor my progress through therapy.  I decided to begin including these values in my posts.  Here is a brief explanation:

  • Hemoglobin (Hg) - The total amount of the oxygen-carrying molecule found in red blood cells.  Given as grams per deciliter (0.1L) of blood.  Normal is 13.3-17.7 g/dL, mine usually hangs around 11 g/dL.  Low values cause sleepiness.
  • Total White Blood Count (WBC) - The absolute number of white blood cells circulating, given as an integer times 10^9 cells per liter.  Normal is 4.0-11.0 x 10^9/L.  Low values indicate a compromised immune system, high values indicate current infection.
  • Platelets (P) - Absolute count of the blood-clotting agent, given as an integer times 10^9 platelets per liter.  Normal is over 100 x 10^9/L.  If the platelets are too low (<10 x 10^9/L) blood won't clot and a transfusion is necessary.  If it is too high (>500 x 10^9/L) clots can form spontaneously.
  • Absolute Neutrophil Count (absN) - a count of neutrophils circulating, given as an integer times 10^9 cells per liter.  Normal is 1.6-8.3 x 10^9/L.  The lower this number, the less able my body is to fight infection.  Anything <1.0 x 10^9/L is considered neutropenic.
  • Creatinine (C) - A chemical biproduct filtered by the kidneys, given in milligrams per deciliter.  Normal is less than 1.25 mg/dL.  I need to stay under 2.0 mg/dL to be eligible for marrow transplant.

My counts for 12/27:
Hg 8.6
WBC 2.0
P 62
absN 3.0
C 1.31

Tonight I received my last dose of chemo.  Still haven't felt much nausea.  Eyes remain poor and glucose continues to be well controlled.  My temperature is consistently normal (which means no uncontrolled infection), my blood pressure down (I had difficulty with that last time), and my percent oxygen saturation in my blood is always around 100% (meaning my lung is efficiently exchanging oxygen and carbon dioxide.  This would be down to 90% or lower if I was struggling with a pneumonia). My hemoglobin is down today so I felt tired, but my doctors aren't surprised that it's dropping.  Platelets, red blood cells (and thus hemoglobin), and white blood cells are all produced from the same stem cells, and all three will drop due to the chemotherapy.  I'm also constipated but my appetite remains well.  I guess I'll just keep cramming it in.

26 December 2009

Day 4

If I have learned one thing from extended stays in hospitals it is this:  no news is good news.  Because unless you're being discharged (the best day ever) it means you're having more procedures done, and 'nothing' is better than a procedure.

Today oncology and endocrinology were here for about five minutes each.  The only complications I have from treatment so far are the eye problems and the high glucose associated with steroid use.  As for the hyperglycemia, I'm happy to report it stayed under control all night.  However, I seem to have the most difficulty controlling it during the afternoon and evening, so we'll see how tonight goes.  I think I need to adjust my carb ratios (how many units I give per gram of carbohydrate eaten) due to the steroid treatments.  I finished lunch at 1145 and I'm already up from 152 at 1200 to 250 at 1300.

Suk, my nurse, just came in and I discussed the idea with her.  She's on board.  She's always so sweet to me.

So I took 4.3U correction at 1310 and will check my glucose in an hour.

My eyesight remains poor, but I am still able to use a computer.  Reading words off the TV is tricky.  I receive eye drops (another steroid, of course) every four hours to help protect my eyes from the chemo, but an improvement has yet to be seen (pun definitely intended).  By 31 December I will have finished with chemotherapy and the majority of the hazardous waste will have flushed from my body. As I'm told by oncology, my eyesight should begin to return.  If not I'll be considered for further treatment.

I am encouraged by the treatment so far.  I still feel healthy.  My ability to get out of bed, take a shower, and walk around the hospital amazes me, as it was never like this before.  The challenge will be remaining this way once my counts are down.

I love visitors, even if it's someone to just sit and watch TV.  Or calls, my room phone is 612 273 0729.